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BMT/PSC Resource Guide

                                                                                    HCT Resource Guide: Version 7.0

INTERLINK’s medical team compiled the table below of transplant related agencies, vendors and support programs that can be contacted by internet or telephone.  Some of the agencies and programs provide very specific information which may be useful during the transplant process, and it is our hope this list will lead you to the precise information you need.   This list is not necessarily complete and INTERLINK does not endorse any of the organizations and is providing this information in a non-biased manner.  You should evaluate sources of information carefully before making important decisions.  As always, the most patient specific source of information about your potential transplant will be provided to you from the transplant center(s) your candidate or insured is considering.

Unlike solid organ websites, there is no one single outstanding website for volume and outcome information.     Our medical team recommends that you contact your COE network team for tips and advice when your member is selecting and evaluating centers.   We strongly recommend that you refer to this resource and to the website of the transplant center or centers that your candidate/insured is considering.  The transplant center websites frequently contain the most up-to-date list of housing options and other current information that will be of importance to you.

Web Links


  General Information


Blood and Marrow Transplant Information Network

Center for International Blood & Marrow Transplant Research (CIBMTR)

National Bone Marrow Transplant Link (NBMTLink)

American Society for Blood and Marrow Transplantation (ASBMT)

American Society of Hematology

The Leukemia & Lymphoma Society

National Cancer Institute

National Comprehensive Cancer Network

  Clinical Trials


Blood and Marrow Transplant Clinical Trials Network

BMT Clinical Trials Network

National Institutes of Health (NIH)

Cancer and Leukemia Group B (CALGB)

Children’s Oncology Group (COG)

Eastern Cooperative Oncology Group (ECOG)

Southwest Oncology Group (SWOG)

  Marrow Registries


Be the Match

Asians for Miracle Marrow Matches

Caitlin Raymond International Registry

  Financial Assistance/Information


Children’s Organ Transplant Association (COTA)

The Medicine Program

National Associations of Hospital Hospitality

National Foundation for Transplants

National Transplant Assistance Fund

Patient Advocate Foundation

Pharmaceutical Research and Manufacturers of America

Needy Meds



Air Care Alliance

Angel Flight

Air Charity Network

Corporate Angel Network

National Patient Travel Center

  Support Organizations


BMT Support Online

Candlelighters Childhood Cancer Foundation

National Respite Locator Service

Family Caregivers Alliance

Family Voices

Friends Health Connection

National Alliance for Caregiving

National Children’s Cancer Society

National Coalition for Cancer Survivorship

National Family Caregivers Association

Rosalyn Carter Institute

Starlight Foundation

The Empowered Patient Coalition

The Wellness Community

Vital Options TeleSupport Cancer Network

Well Spouse Foundation

Women’s Cancer Resource Center