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BMT/PSC Resource Guide


                                                                                    HCT Resource Guide: Version 7.0

INTERLINK’s medical team compiled the table below of transplant related agencies, vendors and support programs that can be contacted by internet or telephone.  Some of the agencies and programs provide very specific information which may be useful during the transplant process, and it is our hope this list will lead you to the precise information you need.   This list is not necessarily complete and INTERLINK does not endorse any of the organizations and is providing this information in a non-biased manner.  You should evaluate sources of information carefully before making important decisions.  As always, the most patient specific source of information about your potential transplant will be provided to you from the transplant center(s) your candidate or insured is considering.

Unlike solid organ websites, there is no one single outstanding website for volume and outcome information.     Our medical team recommends that you contact your COE network team for tips and advice when your member is selecting and evaluating centers.   We strongly recommend that you refer to this resource and to the website of the transplant center or centers that your candidate/insured is considering.  The transplant center websites frequently contain the most up-to-date list of housing options and other current information that will be of importance to you.

Web Links

 

  General Information

 

Blood and Marrow Transplant Information Network

http://www.bmtinfonet.org/

Center for International Blood & Marrow Transplant Research (CIBMTR)

www.cibmtr.org

National Bone Marrow Transplant Link (NBMTLink)

www.nbmtlink.org

American Society for Blood and Marrow Transplantation (ASBMT)

www.asbmt.org

American Society of Hematology

http://www.hematology.org/

The Leukemia & Lymphoma Society

www.leukemia-lymphoma.org

National Cancer Institute

http://www.cancer.gov/

National Comprehensive Cancer Network

http://www.nccn.org/

  Clinical Trials

 

Blood and Marrow Transplant Clinical Trials Network

http://www.bmtctn.net/

BMT Clinical Trials Network

web.emmes.com/study/bmt2/

National Institutes of Health (NIH)

www.clinicaltrials.gov

Cancer and Leukemia Group B (CALGB)

www.calgb.org

Children’s Oncology Group (COG)

www.childrensoncologygroup.org

Eastern Cooperative Oncology Group (ECOG)

http://ecog-acrin.org/

Southwest Oncology Group (SWOG)

www.swog.org

  Marrow Registries

 

Be the Match

https://bethematch.org/

Asians for Miracle Marrow Matches

www.asianmarrow.org

Caitlin Raymond International Registry

www.crir.org

  Financial Assistance/Information

 

Children’s Organ Transplant Association (COTA)

www.cota.org

The Medicine Program

www.themedicineprogram.com

National Associations of Hospital Hospitality
Houses

www.nahhh.org

National Foundation for Transplants

www.transplants.org

National Transplant Assistance Fund

www.ntafund.org

Patient Advocate Foundation

www.patientadvocate.org

Pharmaceutical Research and Manufacturers of America

www.phrma.org

Needy Meds

www.needymeds.com

  Transportation

 

Air Care Alliance

www.aircareall.org

Angel Flight

http://www.angelflight.com/

Air Charity Network

http://aircharitynetwork.org/

Corporate Angel Network

www.corpangelnetwork.org

National Patient Travel Center

www.patienttravel.org

  Support Organizations

 

BMT Support Online

www.bmtsupport.org

Candlelighters Childhood Cancer Foundation

www.acco.org

National Respite Locator Service

www.respitelocator.org

Family Caregivers Alliance

www.caregiver.org

Family Voices

www.familyvoices.org

Friends Health Connection

www.friendshealthconnection.org

National Alliance for Caregiving

www.caregiving.org

National Children’s Cancer Society

www.children-cancer.org

National Coalition for Cancer Survivorship

www.canceradvocacy.org

National Family Caregivers Association

www.nfcacares.org

Rosalyn Carter Institute

www.rci.gsw.edu

Starlight Foundation

www.starlight.org

The Empowered Patient Coalition

http://empoweredpatientcoalition.org/

The Wellness Community

http://www.cancersupportcommunity.org/

Vital Options TeleSupport Cancer Network

www.vitaloptions.org

Well Spouse Foundation

http://www.wellspouse.org/

Women’s Cancer Resource Center

www.wcrc.org